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RE: RLS-UK/Ekbom Association ( was ESG) Living with RLS - study
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Susie
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Oct 10, 2008 23:57 PDT
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Hi Ellie,
Thanks for interest.
I suffer from RLS too.
Tiredness seems to effect mine!
My dad had it as well.
Please contact me if you want me to.
Best wishes
Susie
PS I live in the Wirral and we used to go to a cottage near Belper. Know the
area well.
Remember some very nice afternoon teas at Kedleston Hall!-Original
Message-------
From: Robin Sanders
Date: 10/10/2008 18:50:08
To: ekbomsuppo-@topica.com
Subject: RE: (RLS-UK support) RLS-UK/Ekbom Association ( was ESG) Living
with RLS - study
Ellie
I'm pleased to hear that someone else is taking an interest in what to me is
a very debilitating condition. Currently I am suffering bad nights,
evenings and afternoons although the taking of Requip is easing the night
sleep problem. By all means give me a call and I will try and help you.
Beast wishes
Robin
--------------------------------------------------
From: "Ellie MacDonald" <E.A.M.Ma-@student.derby.ac.uk>
Sent: Wednesday, October 08, 2008 1:47 PM
To: <ekbomsuppo-@topica.com>
Subject: RLS-UK/Ekbom Association ( was ESG) Living with RLS - study update
& requests fo
| |
Hello everyone,
I have posted previously on this subject, but I have noticed over the
last few months that several new members have joined the group. I am a
third year undergraduate at the University of Derby and as part of my
final year assessment I have to undertake a piece of independent
research, the area I have chosen is Ekbom Syndrome /RLS. I am interested
in the degree to which the condition affects the patient's Quality of
Life. I will be carrying out an interview which will provide you with
plenty of opportunity to describe how the condition affects you. Please
contact me if you would like more information, the ethics of my research
are currently being passed and the interviews will be commencing
shortly. The Quality of Life area is greatly under researched and to
date there is NO PUBLISHED literature detailing the degree to which
lives are affected by this condition. Research exists using standard
questionairres providing lots of statistics, but rich qualitative
interviews are absent and this needs to be rectified. It is tremendously
difficult finding people who are willing to help, but hopefully you will
see my efforts are for the greater good! Thank you very much to the
people who have contacted me and who are still willing to help out, but
I do need a few more, please do not be afraid to offer the help, I am
willing to travel to conduct the interviews and at present the willing
participants are the length and breadth of the United Kingdom. Even if
you just want to ask me a few questions then change your mind - that is
fine, it is your prerogative. Thanking you all in anticipation of an
overwhelming response!
Regards
Ellie MacDonald
Ellie MacDonald
3rd Year Psychology Undergraduate
University of Derby
Kedleston Road
Derby
Hey Dudes go to this USA site for awesome info
http://www.rls.org
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The web site of the Ekbom Support Association is
http://www.rlsuk-esa.org.uk
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<DIV>Hi Ellie,</DIV>
<DIV> </DIV>
<DIV>Thanks for interest.</DIV>
<DIV>I suffer from RLS too.</DIV>
<DIV> </DIV>
<DIV>Tiredness seems to effect mine!</DIV>
<DIV>My dad had it as well.</DIV>
<DIV> </DIV>
<DIV>Please contact me if you want me to.</DIV>
<DIV>Best wishes</DIV>
<DIV>Susie</DIV>
<DIV> </DIV>
<DIV>PS I live in the Wirral and we used to go to a cottage near Belper. Know the area well. </DIV>
<DIV>Remember some very nice afternoon teas at Kedleston Hall!<I>-Original Message-------</I></DIV>
<DIV> </DIV>
<DIV id=receivestrings>
<DIV dir=ltr style="FONT-SIZE: 11pt"><I><B>From:</B></I> <A href="mailto:robin_s-@live.com">Robin Sanders</A></DIV>
<DIV dir=ltr style="FONT-SIZE: 11pt"><I><B>Date:</B></I> 10/10/2008 18:50:08</DIV>
<DIV dir=ltr style="FONT-SIZE: 11pt"><I><B>To:</B></I> <A href="mailto:ekbomsuppo-@topica.com">ekbomsuppo-@topica.com</A></DIV>
<DIV dir=ltr style="FONT-SIZE: 11pt"><I><B>Subject:</B></I> RE: (RLS-UK support) RLS-UK/Ekbom Association ( was ESG) Living with RLS - study</DIV></DIV>
<DIV> </DIV>
<DIV>Ellie</DIV>
<DIV> </DIV>
<DIV>I'm pleased to hear that someone else is taking an interest in what to me is</DIV>
<DIV>a very debilitating condition. Currently I am suffering bad nights,</DIV>
<DIV>evenings and afternoons although the taking of Requip is easing the night</DIV>
<DIV>sleep problem. By all means give me a call and I will try and help you.</DIV>
<DIV> </DIV>
<DIV>Beast wishes</DIV>
<DIV> </DIV>
<DIV>Robin</DIV>
<DIV> </DIV>
<DIV> </DIV>
<DIV>--------------------------------------------------</DIV>
<DIV>From: "Ellie MacDonald" <<A href="mailto:E.A.M.Ma-@student.derby.ac.uk">E.A.M.Ma-@student.derby.ac.uk</A>></DIV>
<DIV>Sent: Wednesday, October 08, 2008 1:47 PM</DIV>
<DIV>To: <<A href="mailto:ekbomsuppo-@topica.com">ekbomsuppo-@topica.com</A>></DIV>
<DIV>Subject: RLS-UK/Ekbom Association ( was ESG) Living with RLS - study update</DIV>
<DIV>& requests fo</DIV>
<DIV> </DIV>
<DIV>></DIV>
<DIV>> Hello everyone,</DIV>
<DIV>> I have posted previously on this subject, but I have noticed over the</DIV>
<DIV>> last few months that several new members have joined the group. I am a</DIV>
<DIV>> third year undergraduate at the University of Derby and as part of my</DIV>
<DIV>> final year assessment I have to undertake a piece of independent</DIV>
<DIV>> research, the area I have chosen is Ekbom Syndrome /RLS. I am interested</DIV>
<DIV>> in the degree to which the condition affects the patient's Quality of</DIV>
<DIV>> Life. I will be carrying out an interview which will provide you with</DIV>
<DIV>> plenty of opportunity to describe how the condition affects you. Please</DIV>
<DIV>> contact me if you would like more information, the ethics of my research</DIV>
<DIV>> are currently being passed and the interviews will be commencing</DIV>
<DIV>> shortly. The Quality of Life area is greatly under researched and to</DIV>
<DIV>> date there is NO PUBLISHED literature detailing the degree to which</DIV>
<DIV>> lives are affected by this condition. Research exists using standard</DIV>
<DIV>> questionairres providing lots of statistics, but rich qualitative</DIV>
<DIV>> interviews are absent and this needs to be rectified. It is tremendously</DIV>
<DIV>> difficult finding people who are willing to help, but hopefully you will</DIV>
<DIV>> see my efforts are for the greater good! Thank you very much to the</DIV>
<DIV>> people who have contacted me and who are still willing to help out, but</DIV>
<DIV>> I do need a few more, please do not be afraid to offer the help, I am</DIV>
<DIV>> willing to travel to conduct the interviews and at present the willing</DIV>
<DIV>> participants are the length and breadth of the United Kingdom. Even if</DIV>
<DIV>> you just want to ask me a few questions then change your mind - that is</DIV>
<DIV>> fine, it is your prerogative. Thanking you all in anticipation of an</DIV>
<DIV>> overwhelming response!</DIV>
<DIV>> Regards</DIV>
<DIV>> Ellie MacDonald</DIV>
<DIV>></DIV>
<DIV>></DIV>
<DIV>> Ellie MacDonald</DIV>
<DIV>> 3rd Year Psychology Undergraduate</DIV>
<DIV>> University of Derby</DIV>
<DIV>> Kedleston Road</DIV>
<DIV>> Derby</DIV>
<DIV>></DIV>
<DIV>> Hey Dudes go to this USA site for awesome info</DIV>
<DIV>> <A href="http://www.rls.org">http://www.rls.org</A></DIV>
<DIV>></DIV>
<DIV>></DIV>
<DIV> </DIV>
<DIV>The web site of the Ekbom Support Association is</DIV>
<DIV><A href="http://www.rlsuk-esa.org.uk">http://www.rlsuk-esa.org.uk</A></DIV>
<DIV> </DIV>
<DIV> </DIV>
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