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Re: [TC-NET] Testosterone trail [last day of nil replacement]
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missmouse
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Jan 16, 2009 08:42 PST
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Hi, I had all the symptoms of low T, loss of libido, gynecomastia, loss of
strength, depression emotional feelings etc- im sure you know!
went to several docs before I got to my present one who had the foresight
to think I may have low T.
she sent me to an endocrinologist who did a load of tests on me ( pituitary
stimulation test where they induce you into a diabetic come!) & finally an
MRI scan ( which was clear, the most common pituitary failure is apparently
due to a benign tumor pressing on the gland. This requires surgery!)
So no apparent cause was found but this can occur due to auto immune attack
from your own body.
Anyway, i was then put on various TRT latest being Tostran gel ( which I
dont recommend )
Any other questions get back to me,
cheers,
Simon
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From: "ian macnab" <ian.m-@virgin.net>
Sent: Thursday, January 15, 2009 9:05 PM
To: <hypogo-@topica.com>
Subject: Re: [TC-NET] Testosterone trail [last day of nil replacement]
| | HI SIMON Sorry but you will see that this email was from me Ian and not
Martin so could you give me any more information ? I would be grateful if
you could let me know just what tests you had etc Thanks IAN
----- Original Message -----
From: "missmouse" <missm-@btinternet.com>
To: <hypogo-@topica.com>
Sent: Thursday, January 15, 2009 5:36 PM
Subject: Re: [TC-NET] Testosterone trail [last day of nil replacement]
| | Hi Martin,
reason I get meds in UK is that ive been diagnosed with secondary
hypogonadism!
Simon
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From: "ian macnab" <ian.m-@virgin.net>
Sent: Thursday, January 15, 2009 1:08 PM
To: <hypogo-@topica.com>
Subject: Re: [TC-NET] Testosterone trail [last day of nil replacement]
| | HI Simon, I just have been keeping track of the different messages
relating to testosterone ( or lack of it ) making the rounds as I feel
that I have a problem there myself. I have been in touch with a chap
called Nick who is really clued up one the subject and he reckoned (
going on my blood test results ) that I need some treatment myself. I am
interested in your imput as you are a UK sufferer like me and I was
wondering how you got your GP to get you on the meds ?? I know mine is
a bit reluctant but I found I ticked all the boxes in a questionaire
regarding andropause suggested by Nick , he told me what test to as for
and then gave me his opinion ., I have attatched one of his replies to
me Please let me know how you got the ball rolling, I would be really
obliged Regards Ian ni-@androids.org.uk
----- Original Message -----
From: "missmouse" <missm-@btinternet.com>
To: <hypogo-@topica.com>
Sent: Wednesday, January 14, 2009 10:20 PM
Subject: Re: [TC-NET] Testosterone trail [last day of nil replacement]
| | Hi martin, im in UK & have already enquired to Acrux regarding trial.
However they already have enough volunteers & are well under way with
their clinical trials phase 2.
they hope to be able to market the stuff to Uk NHS in 2010.
I cant wait!
simon
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From: "martin yalden" <myal-@bigpond.net.au>
Sent: Wednesday, January 14, 2009 7:05 AM
To: <hypogo-@topica.com>
Subject: RE: [TC-NET] Testosterone trail [last day of nil replacement]
| | Hi Simon
Sorry for the late reply. Yes it is and I do agree about the gel,
apart from
also drying out my skin, but all being said I would rather the gel
than the
injections and definitely the implants. It has only been seven days
now that
I have been on the trial. The main thing is that I am now feeling so
much
better that being on nothing, although the dosage I feel has to be
increased
as I get the occasional hot flush and quite a few night sweats. Next
week I
have a twenty four hour stay in hospital where my levels are
monitored. But
as Australia goes I do not know when the product will hit the market.
Anyway
which side of what pond are you?
martin
-----Original Message-----
From: missmouse [mailto:missm-@btinternet.com]
Sent: Saturday, 10 January 2009 10:17 PM
To: hypogo-@topica.com
Subject: Re: [TC-NET] Testosterone trail [last day of nil replacement]
Is this Acrux's new underarm testosterone-MD system you are on?
Im very interested in this stuff as I HATE the crappy gel (tostran)
that
im on just now cos the bloody stuff never dries!
Simon
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From: "martin yalden" <myal-@bigpond.net.au>
Sent: Saturday, January 10, 2009 6:10 AM
To: "'Jeff Kinney'" <kinn-@verizon.net>; <flatba-@topica.com>;
<hypogo-@topica.com>; "Tc-net" <tc--@listserv.acor.org>
Subject: RE: [TC-NET] Testosterone trail [last day of nil replacement]
| | Hi Guys
First of all I would like to thank everyone who gave me their
support.
I would like to first add that although there are the two weekly or
the
three monthly injections, for me that is the way I do not want to go.
Daily
is simple and in my view is more easily monitored
Ok, the product I am testing. At first I thought what a load of crap
as I
considered it a few steps backwards to the Testogel. Now having had
my
third
dose I am changing my mind and of course when the product hits the
market
it
may not be in the form that I am using now.
What I have it a plunger bottle that produces X amount of fluid per
pump.
That is put into a container similar to an eye cleaner container but
of a
latex type of structure. By leaning forward and applying the
'container'
to
the armpit that being keeping the container level, then rubber under
the
armpit. I have to use one 'container level per armpit i.e two
dosages. The
fluid dries in seconds. Apart from giving the container a quick wash
in
cold
water, life goes on. The good thing there is no trying to open the
gel
packet as sometimes only scissors will do it, or disposing of them
afterwards. The application is localised and you do not even have to
worry
above any transference on your hands.
Guys, it is early days. Underarm hair does not seem to matter, but
there
is
a question over the type of deodorant used and when. Time will tell.
The
main thing for me at the moment is that I am feeling better each day,
so
watch this space for any updates
By the way I now know what libido is and I didn't need a dictionary
to
find
out. Just something that yelled out a very loud ...... GOOD MORNING
.... this morning.
martin
-----Original Message-----
From: Jeff Kinney [mailto:kinn-@verizon.net]
Sent: Wednesday, 7 January 2009 11:59 PM
To: 'Martin & Val'
Subject: RE: [TC-NET] Testosterone trail [last day of nil
replacement]
How about some details about this new med? What is it? How is it
taken?
Detail Martin Details..... I need em bud
-----Original Message-----
From: TC-NET: The Testicular Cancer Online Support Group
[mailto:TC--@LISTSERV.ACOR.ORG] On Behalf Of Martin & Val
Sent: Wednesday, January 07, 2009 4:39 AM
To: TC--@LISTSERV.ACOR.ORG
Subject: [TC-NET] Testosterone trail [last day of nil replacement]
Hi guys and Gals
December 11th I stopped applying Testogel, making ready for a wash
out
period of one week before having a blood test for the start of the
new
testosterone product that I have been asked to trail. Now it is
January
7th
2009, thirty odd days of nothing. In one way I feel privileged to
have
experienced a window in the lives of Nick O'Hara Smith, David Joel
and my
crazy mate from Adelaide, Jonny Graham. All of which were subject to
the
"I
am God' attitudes of their endocrinologists. What a crap journey it
has
been. The Aussie levels of testosterone for a male, range from the
low of
seven to the high of thirty. After one week I was below one. I found
that
out tonight. I have gone twenty one days after that. How do I feel?
Huh, I
am just too tired to even type a few ablatives. I have had night
sweats,
day
time hot flushes, the feeling of all the strength sucked out of my
muscles,
waking up at night feeling as if my body wanted to scream, yet I felt
totally relaxed. For one week I do not think I slept at all, I am
just too
tired to remember. Libido? What the hell does that mean? Yet my
attitude
has
been good. I am calm; I feel yet not to react. I understand yet not
to
comment. I do my work with myself as my own company. All this I have
had
to
do to contain any unexpected changes in my personality.
Tomorrow though, I go for a blood test and then my first dose of the
new
product. I almost feel like a junkie hanging out for a fix. I just
long to
feel so much better. To be able to sleep at night. To dream the
dreams of
a
normal person. To not have hot flushes when someone I care for gets
too
close to me. To make love to my wife who has been my partner, best
friend
and soul mate for near forty years and to not feel as I now like
someone
that is collapsing within themselves.
It was my choice and my choice alone to assist in this world wide
trail.
My
reason for this email is to bring awareness of those who came before
us
and
gave us the information so we do not have to suffer, through the
ignorance
that they had to. The choice of being one month totally testosterone
deficient was mine alone. How Nick and David survived for the years
they
did
I cannot even comprehend.
Martin
One note though for Mark, if you would not mind. I was asked not to
eat
anything that contained grapefruit as it affected testosterone
levels.
Mark,
maybe you could you explain more. Thanks
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