|
ICR Abstracts: 4.6
|
The Institute for Community Research
|
Jun 22, 2006 09:04 PDT
|
*********************************************************************
SAVE THE DATE: Join ICR for Crossroads II: Transformations through
Community-Based Collaborative Research Conference, June 7-9, 2007 in
Hartford, CT! Check www.incommunityresearch.org for updates on
registration, agenda and related events.
*********************************************************************
[Editor's note: The following articles have been selected because they
collectively deal with a variety of issues related to community-based
research (e.g., collaboration, ethics, methods) and they cover various
disciplines. If you have suggestions for articles/publications for
future postings, or other feedback in the
presentation, simply reply to this email. Thanks for joining!]
ICR Abstracts (4.6: June 22, 2006)
1. Adderley-Kelly, B., & Green, P. M. (2005). Strategies for successful
conduct of research with low-income African American populations.
_Nursing Outlook_, 53(3), 147-152.
Health disparities among racial and ethnic minorities are associated
with poor health outcomes. African Americans bear a disproportionate
amount of the burden of health disparities. The elimination of health
disparities among the nation's racial and ethnic groups requires
immediate action that the health care community cannot accomplish in
isolation. Eliminating health disparities calls for new and
non-traditional partnerships across diverse sectors of the community
that include research initiatives using culturally competent and
participatory action methodologies. While there is much evidence
documenting health disparities in racial and ethnic groups, there is
little evidence of successful interventions that address health
disparities in African Americans. Furthermore, there is little direction
for successful strategies for recruiting African Americans for
participation in health disparities research. This article addresses
important factors to consider when conducting research with low income
African Americans based on the authors' research experience in health
promotion and cancer detection and prevention. Strategies for successful
conduct of research with low income African American populations are
offered.
2. Belue, R., Taylor-Richardson, K. D., Lin, J. M., McClellan, L., &
Hargreaves, M. K. (2006). Racial disparities in sense of community and
health status: implications in community-based participatory
interventions targeting chronic disease in African Americans. _Journal
of Ambulatory Care Management_, 29(2), 112-124.
This study examined the relation between sense of community (SOC),
sociodemographic characteristics, and health status to inform
community-based interventions designed to prevent and reduce chronic
disease in African Americans. A telephone survey was conducted with 1463
randomly selected residents in Nashville, Tenn. Respondents were
majority female (69%), African American (59%), and single (59%), with a
mean age of 55 (+/-17.61 years). African Americans have lower overall
SOC scores, or lower scores on the domains related to perceived
influence over community and sharing of common community values compared
to Whites. High rates of chronic disease and low SES, combined with a
low SOC, can hinder efforts to reduce and eliminate disparities. The
goal of community-based participatory initiatives is to create programs
that are sustainable by the target community after the funding is gone.
Thus, to maximize the success, uptake, and sustainability of
disease-specific interventions, it is imperative to incorporate
assessment of SOC, identify factors that depress SOC, and engage in
community collaboration to develop a plan to improve SOC.
3. Bluthenthal, R. N., Jones, L., Fackler-Lowrie, N., Ellison, M.,
Booker, T., Jones, F., et al. (2006). Witness for Wellness: preliminary
findings from a community-academic participatory research mental health
initiative. _Ethnicity & Disease_, 16(1 Suppl 1), S18-34.
Quality improvement programs promoting depression screening and
appropriate treatment can significantly reduce racial and ethnic
disparities in mental-health care and outcomes. However, promoting the
adoption of quality-improvement strategies requires more than the simple
knowledge of their potential benefits. To better understand depression
issues in racial and ethnic minority communities and to discover,
refine, and promote the adoption of evidence-based interventions in
these communities, a collaborative academic-community participatory
partnership was developed and introduced through a community-based
depression conference. This partnership was based on the
community-influenced model used by Healthy African-American Families, a
community-based agency in south Los Angeles, and the Partners in Care
model developed at the UCLA/RAND NIMH Health Services Research Center.
The integrated model is described in this paper as well as the
activities and preliminary results based on multimethod program
evaluation techniques. We found that combining the two models was
feasible. Significant improvements in depression identification,
knowledge about treatment options, and availability of treatment
providers were observed among conference participants. In addition, the
conference reinforced in the participants the importance of community
mobilization for addressing depression and mental health issues in the
community. Although the project is relatively new and ongoing, already
substantial gains in community activities in the area of depression have
been observed. In addition, new applications of this integrated model
are underway in the areas of diabetes and substance abuse. Continued
monitoring of this project should help refine the model as well as
assist in the identification of process and outcome measures for such
efforts.
4. Butterfoss, F. D. (2006). Process evaluation for community
participation. _Annual Review of Public Health_, 27, 323-340.
This review provides a synthesis of published public health and social
science literature to determine how process evaluation has been used to
examine community participation and its intermediary role in health and
social change outcomes. Community participation is defined, and its
relationship to other community-development principles and evaluation
and research methods is described. Then, case studies and research
initiatives help answer questions such as who participates and why? What
are the benefits and challenges of community participation? What
qualitative and quantitative methods are used in process evaluations to
measure community participation? What measures are used to help define
the influence of community participation in community-based
interventions? A better understanding of these issues is needed to
ensure that community participation is valued and used effectively to
plan and implement health-promotion initiatives and evaluate their
processes and outcomes.
5. Couzos, S., Lea, T., Murray, R., & Culbong, M. (2005). 'We are not
just participants--we are in charge': the NACCHO ear trial and the
process for Aboriginal community-controlled health research. _Ethnicity
& Health_, 10(2), 91-111.
OBJECTIVE: Methodological criteria that characterise ethically sound
community-based studies are often described in overviews but are rarely
documented in clinical studies. Research investigating the health of
Aboriginal Australians is often small-scale, descriptive and largely
driven by non-Indigenous people. The 'community-controlled' model of
research relating to Aboriginal peoples health is a form of
'participatory' research that shifts the balance of control towards
those being researched. This paper describes the methodological issues
and principles that underpin community-controlled health research; their
practical application; and encourages their adoption in research
involving Indigenous populations. DESIGN: Descriptive report of the
methods used to conduct the landmark Aboriginal community-controlled
multi-centre double-blind randomised controlled clinical ear trial
investigating ototopical treatments for chronic suppurative otitis
media. RESULTS: The characteristics of the community-controlled research
model are illustrated under the headings of: setting the research
agenda; research project planning and approval; conduct of research; and
analysis, dissemination and application of findings. CONCLUSION: The 22
methodological elements which defined the community-controlled design of
the ear trial may assist community groups, external research bodies and
funding agencies to improve the acceptability, quality and scope of
research involving Indigenous peoples. Aboriginal community-controlled
organisations are well placed to lead research, which can be
interventional and of a high scientific standard without compromising
the values and principles of those being researched. With over 120
Aboriginal community-controlled health services (ACCHSs) across
Australia, the potential exists for these services to engage in
multi-centre research to realise solutions to health problems faced by
Indigenous Australians.
6. Hergenrather, K. C., Rhodes, S. D., & Clark, G. (2006). Windows to
Work: Exploring Employment-Seeking Behaviors of Persons with HIV/AIDS
Through Photovoice. _AIDS Education & Prevention_, 18(3), 243-258.
The advent of health-enhancing protease inhibitors and highly active
antiretroviral therapy has enhanced the longevity for persons living
with HIV/AIDS (PLWHA), increasing the number of PLWHA returning to
employment. Based on community-based participatory research, the
Photovoice method was used to identify the influences upon the
employment-seeking behavior of 11 PLWHA who were unemployed and had
full-time employment histories after their initial HIV/AIDS diagnosis.
Through group discussion and photograph presentations, participants
identified 19 factors which they grouped into five categories: (a)
advantages of employment, (b) disadvantages of employment, (c) referents
influencing employment decisions, (d) facilitators for employment, and
(e) impediments to employment. Participants utilized these findings to
develop action plans to address the employment-seeking behavior of
PLWHA. The findings also suggest the utility of Photovoice to enhance
employment outcomes for PLWHA.
7. Plumb, M., Price, W., & Kavanaugh-Lynch, M. H. (2004). Funding
community-based participatory research: Lessons learned. _Journal of
Interprofessional Care_, 18(4), 428-439.
The California Breast Cancer Research Program (CBCRP) was created to
fund innovative breast cancer research specifically addressing the needs
of women in California. Beginning in 1997, the Program launched the
Community Research Collaboration (CRC) Program, a Community-Based
Participatory Research (CBPR) program intended to foster
community-researcher collaboration on all aspects of the research
process, essentially placing the community in the center of the research
paradigm. The CBCRP conducted a process evaluation of the CRC Program to
assess success and identify areas for improvement. The evaluation
included community-researcher collaborations and the award process. The
evaluation identified successes that speak to the effectiveness of the
collaboration concept: empowering women to formulate and initiate
research; involving underserved and hard-to-reach populations;
addressing important and useful research questions; increasing
communities' skills and expertise, and enabling lasting collaborations.
The greatest weakness identified was the involvement of the broader
community (beyond the group/organization involved) in these projects.
The evaluation identified strengths in CBCRP's award process, including
technical assistance and feedback, the emphasis on collaboration in the
review process, and awarding funds directly to community groups.
Barriers included: power imbalances due to the community's lack of
experience in the dominant research funding culture; funding limits and
award delays; and the increased service demand beyond the funding limits
of the award that is created. The CBCRP has been able to incorporate
many of the evaluation findings to improve the CRC Program.
8. Quigley, D. (2006). A Review of Improved Ethical Practices in
Environmental and Public Health Research: Case Examples from Native
Communities. _Health Education & Behavior_, 33(2), 130-147.
This article presents a review of 14 case studies and articles of
research ethics issues in the conduct of environmental and public health
research with Native American and other indigenous populations. The
purpose of this review is to highlight new practices in the ethical
conduct of research with native community populations. The findings from
this review can promote more dialogue and policy development on the
issue of community protections in research. Formal guidelines exist in
ethical codes for individual rights as human subjects, but there is a
lack of development on community rights in the ethics of research. This
review illustrates how community-based participatory research practices
can provide working guidelines that can overcome past research harms.
More important, the compilations of guidelines offer tested field
methods for improving the ethical conduct of research with native
community populations.
9. Rhodes, S. D., Hergenrather, K. C., Wilkin, A., Alegria-Ortega, J., &
Montano, J. (2006). Preventing HIV infection among young immigrant
Latino men: Results from focus groups using community-based
participatory research. _Journal of the National Medical Association_,
98(4), 564-573.
Latinos in the United States have been disproportionately affected by
the intersecting epidemics of HIV and sexually transmitted diseases
(STDs). Using a community-based participatory research (CBPR) approach
to problem identification and exploration, a total of 74 Latino men
(mean age 22.3, range 18-37) residing in an urban city in northwest
North Carolina participated in one of eight focus groups on sexual
health. Among the findings of this study, > 75% of participants reported
Mexico as their country of origin; other participants reported being
from Central and South American countries. Qualitative data analysis
identified 13 themes, which were grouped into the following three
domains: 1) psychosocial factors identified as influencing sexual risk
health behaviors; 2) system-level barriers to sexual health; and 3)
characteristics of potentially effective HIV prevention intervention
approaches. The study findings suggest that community-based,
male-centered interpersonal networks that provide individual and group
education and skill-building and incorporate curanderos (Latino healers
and bilingual experts may be important elements of potentially effective
intervention approaches to reach Latino men, who have been inaccessible
to conventional HIV prevention programs.
10. Sarkisian, C. A., Brusuelas, R. J., Steers, W. N., Davidson, M. B.,
Brown, A. F., Norris, K. C., et al. (2005). Using focus groups of older
African Americans and Latinos with diabetes to modify a self-care
empowerment intervention. _Ethnicity & Disease_, 15(2), 283-291.
OBJECTIVE: To make cultural and age-specific modifications to a
self-care empowerment intervention. DESIGN: Focus groups with
self-administered surveys. SETTING: Two public health diabetes and
geriatrics clinic and two senior centers in and around South Los
Angeles. PARTICIPANTS: African Americans and Latinos aged > or = 55
years with diabetes (N=79), and two groups of health educators (N=16).
MAIN OUTCOME MEASURES: After describing the proposed intervention, the
focus group facilitators asked participants: 1) whether the community of
interest would be interested in the proposed empowerment intervention;
2) why or why not; and 3) how the intervention could be modified to
better address the concerns of the study community of interest. All
groups were audiotaped, transcribed, and (when appropriate) translated
into English. Three independent investigators read all transcripts and
completed standardized coding forms for each transcript. In addition, at
the end of each focus group, all participants completed a
self-administered written survey asking them to rate aspects of the
proposed intervention. RESULTS: Older African Americans and Latinos
endorsed the intervention but desired an expanded dietary educational
component and identified disability as an important missing content
area. Participants rejected the use of an audio learning tool and did
not believe that matching group-facilitator sociodemographic
characteristics was important as long as facilitators demonstrated
cultural competency. CONCLUSIONS: These findings illustrate a model of
participatory research in which researchers and community members work
together to develop an empowerment intervention that will meet community
needs and will have greater cultural appropriateness. Modifying the
intervention in accordance with these findings should enhance the
relevance and impact of the self-care intervention.
11. Shoultz, J., Oneha, M. F., Magnussen, L., Hla, M. M.,
Brees-Saunders, Z., Cruz, M. D., et al. (2006). Finding solutions to
challenges faced in community-based participatory research between
academic and community organizations. _Journal of Interprofessional
Care_, 20(2), 133-144.
Partnerships between communities and academic institutions have been
vital in addressing complex health and psychosocial issues faced by
culturally diverse and hard-to-reach populations. Community-based
participatory research (CBPR) has been suggested as a strategy to
develop trust and build on the strengths of partners from various
settings to address significant health issues, particularly those
persistent health issues that reveal disparities among minority
populations. There have been many challenges to developing these
partnerships in the United States. The purpose of this paper is to
discuss approaches and solutions used by this research team in response
to the challenges they have faced in using CBPR. The team uses CBPR to
understand and support the process of disclosure of intimate partner
violence (IPV) within the context of the community health centers that
provide services for multicultural and multi-lingual populations. While
CBPR provides a route to develop trust and build on the strengths of
partners from various settings, there are multiple challenges that arise
when partnering organizations present with different infrastructures,
missions, resources and populations served. Examples of common
challenges and solutions from the literature and from the team's
experience will be discussed. Implications for partners, partnerships,
practice and research will be explored.
12. Slater, M. D., Kelly, K. J., Edwards, R. W., Thurman, P. J.,
Plested, B. A., Keefe, T. J., et al. (2006). Combining in-school and
community-based media efforts: Reducing marijuana and alcohol uptake
among younger adolescents. _Health Education Research_, 21(1), 157-167.
This study tests the impact of an in-school mediated communication
campaign based on social marketing principles, in combination with a
participatory, community-based media effort, on marijuana, alcohol and
tobacco uptake among middle-school students. Eight media treatment and
eight control communities throughout the US were randomly assigned to
condition. Within both media treatment and media control communities,
one school received a research-based prevention curriculum and one
school did not, resulting in a crossed, split-plot design. Four waves of
longitudinal data were collected over 2 years in each school and were
analyzed using generalized linear mixed models to account for clustering
effects. Youth in intervention communities (N = 4,216) showed fewer
users at final post-test for marijuana [odds ratio (OR) = 0.50, P =
0.019], alcohol (OR = 0.40, P = 0.009) and cigarettes (OR = 0.49, P =
0.039), one-tailed. Growth trajectory results were significant for
marijuana (P = 0.040), marginal for alcohol (P = 0.051) and
non-significant for cigarettes (P = 0.114). Results suggest that an
appropriately designed in-school and community-based media effort can
reduce youth substance uptake. Effectiveness does not depend on the
presence of an in-school prevention curriculum.
13. Spiegel, J., Garcia, M., Bonet, M., Yassi, A., Spiegel, J., Garcia,
M., et al. (2006). Learning together: A Canada-Cuba research
collaboration to improve the sustainable management of environmental
health risks. _Canadian Journal of Public Health. Revue Canadienne de
Sante Publique_, 97(1), 50-55.
OBJECTIVE: To build a national Cuban capacity for training environmental
health professionals directly linked to the needs of policy-makers and
communities. PARTICIPANTS: The University of Manitoba and University of
British Columbia collaborated with an established training centre in
Cuba (the Instituto Nacional de Higiene y Epidemiologia--INHEM) and new
centres in the Central (Santa Clara) and Eastern (Santiago) regions of
the country. SETTING: Cuba. INTERVENTION: In the mid-1990s, a
comprehensive curriculum (masters and diploma programs) was
collaboratively developed, applying interactive teaching methods, and
was delivered through a series of workshops and other interactions in
Cuba, and short-term visits to Canada by Cuban PhD students. OUTCOMES:
The collaboration was successful in fulfilling capacity-building targets
(over 50 Masters graduates, 467 Diploma graduates, over 30 trained core
faculty in all regional centres as well as new curriculum and new
accredited regional programs). Alongside this, a number of collaborative
community-based research projects were undertaken in all three regions
(drinking water in Santiago; housing and urban renewal, and dengue
control in Havana; and tourism-related effects, and effective
intersectoral management of population health determinants in Santa
Clara). CONCLUSION: The collaboration led to adopting new strategies for
challenges such as a dengue epidemic in 2002, and new research on the
effectiveness of intersectoral management of risks of particular
interest to both Cuban and Canadian policy-makers. It triggered an
ambitious collaboration between the Canadian-Cuban team and colleagues
in Ecuador in order to build a similar national network there, built on
South-South and North-South links.
14.Stewart, R., Wiggins, M., Thomas, J., Oliver, S., Brunton, G., &
Ellison, G. T. (2005). Exploring the evidence-practice gap: A workshop
report on mixed and participatory training for HIV prevention in
Southern Africa. _Education for Health: Change in Learning & Practice_,
18(2), 224-235.
BACKGROUND: The gap between what is known and what is done about public
health (the evidence-practice gap) needs addressing. One solution may be
through mixed and participatory training in accessing and appraising
research. APPROACH: Residential workshops trained policy-makers,
practitioners and researchers from seven southern-African countries in
evidence-based decision-making for HIV prevention. They included
training in accessing, critiquing and summarizing research, whilst
remaining responsive to the priorities of the participants. REFLECTIONS:
Drawing on the participants' feedback and our observations, we reflected
on how these workshops may have addressed the evidence-practice gap. We
identified three areas: access to research, understanding of research
and the relevance of research. The workshops enabled a small group of
people to access relevant research in a timely manner. However, more
needs to be done to disseminate research findings appropriately as any
long-term impact will be affected by the political and economic context
in which participants work. We are confident that the participants went
away with increased understanding of the purposes and processes of
research, but for research to make a difference, the research community
needs to emphasise more the publication of research findings written for
potential users. The workshops were most successful in influencing
researchers to consider bridging the evidence-practice gap by producing
more relevant research, applicable to policy-makers and practitioners.
CONCLUSION: This intensive intervention has the potential to reduce the
evidence-practice gap for HIV prevention in southern Africa by training
non-researchers to engage with research, whilst providing an opportunity
for researchers to engage with policy-makers and practitioners.
15. Stockdale, S. E., Mendel, P., Jones, L., Arroyo, W., & Gilmore, J.
(2006). Assessing organizational readiness and change in community
intervention research: Framework for participatory evaluation.
_Ethnicity & Disease_, 16(1 Suppl 1), 136-145.
This paper describes a study currently underway that uses a
collaborative approach to assess organizational capacity to form
partnerships around mental health and substance abuse care. Employing
many of the principles of community-based participatory research, the
study's primary objective is to collaboratively develop a conceptual
understanding and generalizable, practical measures of organizational
capacity. The intent of this collaborative approach is to increase the
rigor and relevance of the assessment framework while strengthening the
ability of health partnerships and stakeholders to understand and track
community organizational capacity. The study investigators developed an
initial model of community dissemination based on the research
literatures on organizations and the diffusion of innovations. Through
the collaborative process, the specific goals of the project shifted
substantially to match the partnership interests and concerns of
community agencies. One of the benefits of a collaborative approach has
been to use researchers' academic knowledge to catalogue potential
factors and the wealth of community co-investigators' experiential
knowledge of interagency dynamics to identify specific relevant
dimensions of capacity. This initial exploratory study represents a
first step toward developing a general approach to conceptualizing and
tracking the organizational capacity of communities. The model and
measurement framework may have wider applicability to capacities to
partner around and implement a variety of health-related interventions
within communities.
16. Tsark, J., Braun, K. L., Tsark, J. U., & Braun, K. L. (2004). Na
Liko Noelo: A program to develop Native Hawaiian researchers. _Pacific
Health Dialog_, 11(2), 225-232.
Native Hawaiians are underrepresented in health research. They also have
expressed dissatisfaction with the way in which many non-native
researchers have formulated research questions, conducted research, and
disseminated findings about Native Hawaiians. 'Imi Hale - Native
Hawaiian Cancer Network was funded by the National Cancer Institute to
increase research training and mentorship opportunities for Native
Hawaiians. To this end, 'Imi Hale has followed principles of
community-based participatory research to engage community members in
identifying research priorities and assuring that research is
beneficial, and not harmful, to Native Hawaiians. Developing indigenous
researchers is a cornerstone of the program and, in its first 4 years
'Imi Hale enrolled 78 Native Hawaiian "budding researchers (called Na
Liko Noelo in Hawaiian), of which 40 (68%) have participated in at least
one training and 28 (36%) have served as investigators, 40 (51%) as
research assistants, and 10 (13%) as mentors on cancer prevention and
control studies. The major challenge for Na Liko Noelo is finding the
time needed to devote to research and writing scientific papers, as most
have competing professional and personal obligations. Program evaluation
efforts suggest, however, that 'Imi Hale and its Na Liko Noelo program
are well accepted and are helping develop a cadre of community-sensitive
indigenous Hawaiian researchers.
17. Vasquez, V. B., Minkler, M., & Shepard, P. (2006). Promoting
environmental health policy through community based participatory
research: A case study from Harlem, New York. _Journal of Urban Health_,
83(1), 101-110.
Community-academic partnerships have demonstrated potential for studying
and improving community and environmental health, but only recently have
their policy impacts been systematically studied. This case study
highlights the evolution, research, and policy processes and outcomes of
a community based participatory research (CBPR) partnership that has bad
multilevel impacts on health policy concerning diesel bus emissions and
related environmental justice issues. The partnership between West
Harlem Environmental ACTion, Inc. (WE ACT) and the Columbia University
Center for Children's Environmental Health was explored using a
multimethod case study approach. The conversion of New York City's bus
fleet to clean diesel and the installation by the EPA of permanent air
monitors in Harlem and other "hot spots" were among the outcomes for
which the partnership's research and policy work was given substantial
credit. Lessons for other urban community-academic partnerships
interested in using CBPR to promote healthy public policy are discussed.
18. Veinot, T. C., Flicker, S. E., Skinner, H. A., McClelland, A.,
Saulnier, P., Read, S. E., et al. (2006). "Supposed to make you better
but it doesn't really": HIV-positive youths' perceptions of HIV
treatment. _Journal of Adolescent Health_, 38(3), 261-267.
PURPOSE: Half of new HIV infections worldwide occur among young people.
Youth, particularly young women aged 15-29 years, represent a growing
population to experience HIV. This study investigated HIV-positive
youths' perceptions of, and experiences with, antiretroviral treatment.
METHODS: A community-based, participatory approach was used to conduct a
mixed methods research study. Thirty-four qualitative, in-depth,
semi-structured interviews were conducted with HIV-positive youth (ages
12-24 years) in Ontario, Canada. Brief structured demographic surveys
were also administered. A research team of HIV-positive youth,
professionals, and researchers collaboratively analyzed the data for
emerging themes. RESULTS: Four major themes emerged: Treatment
knowledge: confusion and skepticism. Many participants did not
understand, or believe in, antiretroviral treatment. Some youth on
treatment did not understand why they were taking medications. Treatment
decision-making: lack of choice and feeling emotionally unprepared. Some
youth did not feel that they had choices about treatment, and others did
not feel ready to make treatment decisions. Difficulties taking
medications. Youth had problems with social routine disruption, feeling
"different" and side effects. Many viewed costs of medications as a
barrier to treatment. Inconsistent treatment adherence and treatment
interruptions, which were common amongst participants. CONCLUSIONS:
Youth may need support for managing difficulties with treatments, such
as side effects, social impacts, and adherence. Developmentally
appropriate, empowerment-based treatment education may be helpful for
HIV-positive youth. The availability of social programs to provide
treatment access does not guarantee that youth will be aware of them.
This may indicate a need for youth-specific outreach.
19. Westfall, J. M., VanVorst, R. F., Main, D. S., & Herbert, C. (2006).
Community-based participatory research in practice-based research
networks. _Annals of Family Medicine_, 4(1), 8-14.
PURPOSE We wanted to describe community-based participatory research in
practice-based research networks in the United States. METHODS We
surveyed all identified practice-based research networks (PBRNs) in the
United States to find out whether they had a mechanism for obtaining
feedback or involvement from the community of patients served by PBRN
physicians. We asked open-ended questions on how they involve community
members and whether they had plans for future involvement of community
members and/or patients. RESULTS We received 46 completed questionnaires
(71% response rate). Twenty-four reported that they have some mechanism
to involve community members and/or patients in their research. No PBRN
reported full participatory methods; however, several PBRNs reported
active involvement by community members to generate research ideas,
review research protocols, interpret results, and disseminate findings.
CONCLUSION While perhaps not meeting the classical definition of CBPR,
some PBRNs are involving community members and patients in their
research. There is a wide spectrum of involvement by community members
in PBRN research. Many PBRNs reported plans to involve community members
in their research. We believe that community involvement will enhance
PBRN research.
20. Zoellner, J. M., Connell, C., Santell, R., Fungwe, T., Strickland,
E., Yadrick, K., et al. (2006). Community-based participatory research:
Benefits and challenges in the Hollandale Fit for Life Steps program.
_Faseb Journal_, 20(4), A130-A130.
|
|
 |
|
